Ileostomy Contact List - Page 1

Name: Steve Strizic
Email: sstriz@earthlink.net
Surgery: Ileostomy
More Info: Shaz, You are a very talented and dedicated person. I have seen your name around the web so I thought I 'd say hello.I had my surgery 10 years ago and like you I feel a need to reach out to others. I am involved with the United Ostomy Association as a Chapter Coordinator and I am on the National Board of Directors. I also voluteer for the Crohn's and Colitis Foundation of America and am on the Washington State chapters Board of Trustees. My third organization I work with is the American Cancer Society. If I can be of any help, please let me know. Keep on Keepin' on!

Name: Mary Campos
Email: mcampos@intertek.net
Surgery: Ileostomy
IBD: Had UC
More Info: I had my Ileostomy done in Feb 98. All is well and I'm greatful. If you would like to talk about Ileostomies or other things, please e-mail me and visit my homepage for areas that interest you as well. Take Care and Best of Health to All.

Name: Lindsay
Email: Lhenderson@mailcity.com
Surgery: Ileostomy
More Info: I've had crohns since I was 6 years old but it didn't get diagnosed until I was 10. Since then I have been in and out of the hospital many times and on almost every medication for crohns, but I really didn't want to have ostomy surgery even though the dr's kept telling me that it would make me feel better. Then, in december of 98 I got really sick and didn't have a choice about surgery, so, now I'm trying to learn more about it since this is all very new. I'd love to hear from anyone in a similar situation.

Name: Paul Simpson
Email: paulsimpson5@hotmail.com
More Info:I had my Op in on April 1st 1998, so I'm new to all this. I had three op's because I had bleeding and after two weeks adhesions (small bowel sticking to itself). All in all I am happy to be alive! I am a Christian and would especially like to meet other christians in my situation, but all are welcome.

Name: Jeff Davis
Email: jeffd37@hotmail.com
ICQ: 7613133
Surgery: Ileostomy
IBD: Colon Cancer
More Info:My name is Jeff Davis and I have had my ostomy for three years now. I am now able to go backpacking because of it. And I would do it over again. I got mine because of colon cancer that runs through my family. I would love to talk to anyone that has an ileostomy or any ostomy. I also help out on the #cancer channel on chatnet on mIRC. You can also get me on icq #7613133.

Name: Ian Comeau
Email: icomeau@bigfoot.com
Age: 27
Surgery: Ileostomy
IBD: UC
More Info:I'm 27 now, but I've had mine since I was nine. The only thing that having an ostomy has prevented me from doing was karate. Other that that, I can't complain about life.

Name: Gayle Stowe
Email: gstowe@bfm.bm
Age: 39
Country: Bermuda
IBD: Ulcerative Colitis
Surgery: Ileostomy
Medication: Indocid
More Info: In 1986 I was diagnosed with a condition called Ankylosing Spondylitis (AS) which affects the major joints of my body, especially the spine. With this come complications, such as IBD and uveitis (inflammation of the eye). I had a swift, but severe attack of UC in 1989 which resulted in my acquiring my stoma, "Willie" from an ileostomy. Since then I have also had a hip replacement, further surgery due to adhesions in the small intestine and I am now about to undergo removal of a cataract that was caused by treatment of the uveitis! I would be interested in hearing from any ostomates, anyone who has IBD, uveitis or AS.

Name: Rudy
Email: DRudzin@egii.com
Surgery: Ileostomy
IBD: UC
More Info: Surgery 26 years ago. Physically recovered in 3 months. Mentally it took 15 years. Willing to help any and all people who need. Belong to a young ostomate group, with men & women, married and single who are also willing to help. E-mail me for any other info, including my story, medications I was on, and dealing with life i.e. sports,work,sex and anything else.

Name:Jeanne Pulver
Email: jpulver@tconl.com
IBD: CD
Surgery: Ileostomy
More Info: I am a divorced mom of two boys, one is 18 and at Washington U. in St. Louis, Missouri. The other is 10 and in 4th grade. I have had diagnosed Crohn's Disease for 25 yrs (since I was 19). I am the only Director in Nebraska for a great archival scrapbook company known as Creative Memories. I work out of my home. Interestingly enough, I told my 10 yr. old that when I reach Senior Director status, I will treat him to a trip to Australia. Maybe we will come visit you, Shaz! (Feel free - anytime! - Shaz). I have a great sense of humor which has gotten me through many rough times. My gastroent. said he had never seen anyone with as bad a case of Crohn's as I have go so long without an ileo. I am astounded by you young people who seem to cope so well with your stomas, etc. I find it tough after 5 months at my ripe old age. I love photos and memerabilia and that's why I work for CM. I hate to cook - half the time I couldn't eat, anyway. I can eat fine, now, but am not sure for how long. I really thought that my troubles with Crohn's were over after the ileo, but have been informed that I may be in for more problems. We will see.

Name: Candy Moran
Email: candy.moran@virgin.net
Country: England
Age: 42
Surgery: Ileostomy
IBD: UC
More Info: I had my ileostomy in Feb '98, so it is almost brand spanking new!! I'd just like to hear peoples experiences with life with the bag!!
Get in touch and tell me about yourselves!!

Name: Mindy Lauchle
Email: lauchle@chicago.avenew.com
Surgery: Ileostomy
IBD: CD
More Info: I am very active in aquatic and other sports and would like to hear any helpful hints on adhesive maintenance. It will be a year in August 1998 since my surgery so I guess you could say I'm still in the learning process--any little suggestion would be a lot of help. Thanks for the great web page!!