|
Please read the
View Guestbook |
|||
Ileostomy Contact List - Page 10
If you would like to add your name to this contact list, please
fill in your details here.
7th April 2003
Name: Bill
Email: JMAL542000@YAHOO.COM
Age: 52
Country: USA
Surgery: Ileostomy
IBD: ????
More Info: I am a single man and am looking for single females to write to.
7th April 2003
Name: Jim
Email: COASTY46@MSN.COM
Age: 55
Country: Iowa, USA
Surgery: Ileostomy
IBD: ????
More Info: Hi, I'm Jim and I have had an ileostomy since I was 19 years old. Anyone care to chat? I would love for them to email me.
7th April 2003
Name: Carol Parker
Email: CAPN_5602@msn.com
Age: 46
Country: Texas, USA
Surgery: Ileostomy
IBD: UC
More Info: I developed ulcerative colitis at age 13, at age 27 the decision was made to make this monster go away. This was in 1984 when the new internal pouch was just in its infancy. I had my first surgery in May 1984, then 3 months later the second surgery. I can't tell you the relief when the first surgery was over with, the pain, the anemia was totally gone, I had color in my face immediately. About a year later, I got married and had my first and only child in December of 1986. I had a bowel obstruction after the delivery from adhesions and had to be rushed into emergency surgery. I survived again!! Unfortunately, I developed severe pouchitis and I had a permanent ileostomy performed in April 1990. I have learned so much about life and myself, I love life to the fullest and I want to help others with this situation. I have forgotten all about the pain I was in. Peace and love to all. Carol
6th April 2003
Name: John Pernitsch
Email: pernite@videotron.ca
Age: 50
Country: Montreal, Canada
Surgery: Ileostomy
IBD: CD
More Info: I've had an ileostomy for 13 yrs, and also 30 operations. Life is going very well.
3rd April 2003
Name: Heather J Murphy
Email: hmurphy115@yahoo.com
Age: 28
Country: USA
Surgery: Ileostomy
IBD: CD
More Info: I am writing about my mother she recently just spent 10 weeks in the hospital. She has Chrones for 28yrs had several surguries and ended up with an ileostomy. She is having several problems with her bag fitting she only gets one day if she is lucky out of a bag, she also has a special bag with a prosthetic peice because her stoma is inverted anyone else have this problem? Her stoma is constently draining anyone else have this problem any ideas on what could help with that? She still is expericing pain in her stomach even with the Ilestomy? Any ideas you could share with me and my mom would be great! I would love to hear from anyone who would just like to talk or share ideas! God Bless you all! : )
1st April 2003
Name: Cat
Email: capini69@hotmail.com
Age: 17
Country: Leeds, England, UK
MSN: capini69@hotmail.com
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: I've gone through a lot in my life and it's made strong!! If u would like to chat and swop stories get in touch!!
30th March 2003
Name: Jennifer
Email: Benjispunkster@aol.com
Age: 18
Country: Cleveland, Ohio, USA
Surgery: Ileostomy
IBD: CD and cancer
More Info: My name is Jennifer and I am 18 years old. I was diagnosed with IBD in 2000 and had a total colectomy in april 2001 caused by my crohn's and colon caner. I am still trying to handle everything and I have never talk with anyone around my age who has had the same problems as I. I mean it is so hard to be so young with such a hard load. Well, let me give a little bit more info on me. I am from Cleveland OH and hate it here! I have had crohn's for about 3 years now and my ileostomy for about 2 1/2 years and about a year ago I had my rectum also removed. I spent way too much time in the hospital and not enough at home HAHA (a total of 6 1/2 months). I also have a blood cloting disorder and was recently diagnosed with endometriosis. So right now life is hard. I would very much like to have someone to talk to about everything, and none of my friends nor my boyfriend understand. I mean It's has been 2 1/2 years and i have not dealt with it well I cry all the time just thinking about it. I became very depressed and would not leave the house. I always thought someone would know just by looking at me. Until about a week ago my mom suggested I try and go online to find some young people like myself. I see a psych doc once a week and it has been helping a little. But I still feel like an outcast. Only 3 friends know and my boyfriend, whom has been so understanding and caring. My last boyfriend broke up with me when i told him about my "BAG". I just really need some support from people who truly understand. So please help if you can.
29th March 2003
Name: Shirley
Email: shirley.stevens@sbcglobal.net
Age: 65
Country: USA
Surgery: Ileostomy
IBD: CD
More Info: I have had my ilestomy since may '97 had my colon and rectum removed and have had good luck with it. I always felt like I was the only one with this problem until I found this site on the computer and it sure helps to know I'm not alone in this, always glad to talk to anyone who wants to talk.
25th March 2003
Name: Tammy
Email: tami9010@yahoo.com
Age: 35
Country: Central New York, USA
Surgery: Ileostomy
IBD: UC
More Info: I was diagnosed with UC in 1996. I had my first surgery in November 2001. I have many good days as well as many bad days. I believe that a good recovery has a lot to do with how you think and feel about your situation. I would love to talk to anyone that knows what it is like to battle with UC or CD. I have many questions, like what foods do you find are the best/worst to eat? How do you get any energy? Or just to discuss and compare any situations that you may encounter when you have to live with this.
18th March 2003
Name: Dianne
Email: dye@hinchliffs.fsnet.co.uk
Age: 40
Country: United Kingdom
Surgery: Ileostomy
IBD: CD
More Info: Hello, I've only just come across this site and glad to see there's plenty more people like myself. I was diagnosed with Crohn's in Sept 95 and had surgery Feb 99 had a permanent ileostomy with removal of all colon and rectum. Had all the support I could wish for from my husband and two children and I'm so grateful to the to the surgeon, my stoma nurse and Crohn's consultant with all there help and support I don't think I would be writing this today. If anyone feels you would like to email to share what you are going through and how this as affected your life please get in touch.
16th March 2003
Name: Stephanie Haworth
Email: stephanie@haworth3340.freeserve.co.uk
Age: 25
Country: Lancashire, United Kingdom
MSN ID:: sjhaworth@hotmail.com
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: I have had my ileostomy for 1 year now so am quite new to all of this. If anybody out there would like to chat please contact me, could really do with a friend that knows what I'm going through right now.
15th March 2003
Name: Melanie
Email: pitcity@ozemail.com.au
Age: 29
Country: Sydney, NSW, Australia
AIM ID:: Princess22234
Surgery: Ileostomy
IBD: CD
More Info: Hello, hopefully you can help us (me & my husband, Scott) I`ve had the ileostomy for 9 years now. Prior to having it we have 2 beautiful children but now after the surgery we`ve been through 5 treatments of IVF due to scar tissue & adhesions from the operation & can`t have a baby naturally. I've been told that this is not the "norm" & even my stomal therapist & the association have never heard of such a thing, why would this be ??? Could you please help me thankyou.
p.s. Sorry, maybe you need to know that prior to getting crohns & having the ileostomy, I had never been sick & it all happened in the matter of 2 months & have never been on any sort of medication since, nothing it just seems weierd...???
12th March 2003
Name: Jen
Email: princess22234@yahoo.com
Age: 21
Country: New York State, USA
AIM ID:: Princess22234
Surgery: Ileostomy
IBD: CD
More Info: I've been diagnosed with Crohn's since I was 15, but my family and I think that I've had it since I was born. I've had one resection and then it moved to my large intestine. My story is too long to type here, but I'd be glad to share with anyone that wants to hear it. I now have an ileostomy, I've only had it for three weeks. I'm in the stage of dealing with it all right now and am very emotional about it. Hopefully it will get better the longer that I have this.
10th March 2003
Name: Lucy
Email: lucy_dilabbio@hotmail.com
Age: 33
Country: Montreal, Canada
Surgery: Ileostomy
IBD: rectal/vaginal fistulasation
More Info: Looking for someone who's had rectal vaginal fistulas repaired.I'm currently living with an ileostomy for the simplist reason to help cure this fistulas that was tempted to be repaired in mai of 2002 but unfortunatly 3 days after surgey my stitches let go due to an infection, was put several time on antbiotics with the hope that being there would be no stools passing throught the rectume they might just heal.But never the less started passing stool from the other part of the intestine that was connected to rectum.Anyhow to make a long story short rectum is know very ill suffering with sever back pain have to make a decision on either keeping the bag for ever or looking into this j pouch very confused.
8th March 2003
Name: Charmaine
Email: jca.saunders@nf.sypatico.ca
Age: 32
Country: Canada
Surgery: Ileostomy
IBD: UC
More Info: I just found out I am pregnant. I have had an ileostomy for 3 years. I have one child (born 3 months before my surgery). I would LOVE to hear from others who have experienced pregnancy with an ostomy.I have a lot of questions.
28th February 2003
Name: Elaine
Email: etaylor1966@hotmail.com
Age: 36
Country: UK
Surgery: Ileostomy
IBD: UC
22nd February 2003
Name: Shaun
Email: maelstrom_is@hotmail.com
Age: 25
Country: Perth, Australia
Surgery: Ileostomy
IBD: UC
More Info: I suffered from ulcerative colitis before I had the operation, passing out every time I stood up and side effects from experimental drugs, the ileostomy was a life saver and I have never looked back. I have had my fair share of spills and blowouts but I look at them as part of my life. This operation is the best thing to happen to me, bar my first child whom my girlfriend will have in a couple of months.
20th February 2003
Name: Josh
Email: penywisdom@optonline.net
Age: 19
Country: Long Island, New York, USA
Surgery: Ileostomy
IBD: UC
More Info: My colon was 93% inflamed and my hemoglobin had dropped from 10 to 7 overnight, so they decided to remove it... after they removed it, they found dysplasic cells which would have led to colon cancer. I was in the hospital for a week after I had my ileostomy and then sent home. I had to go back the next day because I had a high fever, a twisted bowel, and a collapsed lung (from the central line they put in), and I was back in the hospital for another week... I will have my ileostomy reversal surgery most likely in May.
19th February 2003
Name: Sandra
Email: Misslodge@hotmail.com
Age: 57
Country: England, UK
Surgery: Ileostomy Reversal
IBD: Bowel Cancer
More Info: I am looking for any information which may help my husband following the reversal of his ileostomy 10 months ago. He had bowel cancer and had chemotherapy after his reversal, however, he suffers from a lot of pain every time he needs to go to the toilet (which is very often) but as soon as he begins to meve his bowel the pain goes, this can be repeated anything up to 8 or 9 times before he finally gets relief. He is due to have a scan but the Oncologist is sure it is not cancer again. If anybody else is having this problem I would appreciate hearing about it.
16th February 2003
Name: Darci
Email: acscowgirl@hotmail.com
Age: 15
Country: Anchorage, Alaska, USA
MSN Messenger: acscowgirl@hotmail.com
Surgery: Ileostomy
IBD: CD
More Info: HiHi! Okay, it's february 2003, and I'm not sure how old this site is, but its worth a try. I got "bub bubbles" (kind of like bugs bunny) in January 2002, so he is a year old now. it has really given me my life back, cuz I was diagnosed at age 9, and given bubs at age 14... those 5 years were hell on earth.. I was on countless mgs of steriods, anti-inflammatorys, everything. at times I seem to feel I was robbed of the years of transition between kid to teenager... some of the best years of most pplz lives. but now I'm getting to re-live them, and with a whole new perspective on life. I dance like no one's watching, I love like I'll never get hurt, and I live life as if there is no death. I don't think I'd be able to have a life without good ol' bub. Anyone else who is around my age, feel free, completely free to contact me, I haven't really met many kids in Alaska with crohns or an ostomy, except for Ryan and Whitney. I have to get going. Byez!!!
16th February 2003
Name: Cindi
Email: artisteffie@aol.com
Age: 48
Country: USA
Surgery: Ileostomy
IBD: UC
More Info: I am single and would like to meet some single male ostomates.
14th February 2003
Name: Martina
Email: babuuu@zoznam.sk
Age: 24
Country: Slovakia
Surgery: Ileostomy
IBD: CD
14th February 2003
Name: Terry
Email: desha41073@yahoo.com
Age: 37
Country: Ft. Thomas, USA
Surgery: Ileostomy
IBD: UC
More Info: I'm a 37 year old male. I've had an ileostomy since 1980. I'm a police officer and member of a SWAT team. I lead a very active life!
10th February 2003
Name: Marykay
Email: klante@unique-software.com
Age: 34
Country: St.Paul, Minnesota, USA
Surgery: Ileostomy
IBD: UC
More Info: Hi all, I'm out 5 months from my ileostomy surgery. I'm feeling 100% better from before the surgery. I was diagnosed with UC when I was 21. Went through one bad marriage and with that I had Toxic Mega Colon. Made it through all of that. Only to find my soul mate and marry him 5 years later. This last year was a test for the both of us and I think we passed with flying colors. I still have some problems with body image and intimacy with my husband. We will have been together for 11 years on Valentins Day 2003. I would love any help I can get. Thanx Alot.
9th February 2003
Name: Bennett (Ashley)
Email: FunnySeezter@aol.com
Age: 22
Country: Indiana USA
Surgery: Ileostomy
IBD: CD
More Info: Though I have had "George" for over eleven years now I do not know that much about pouch people. I am the first person in my family to have Crohns or a pouch. My family never spoke of either things openly. I have been going at all of this blind and would love to chat with people who are like me.
8th February 2003
Name: Gary Cumming
Email: garyc@rapid6.fsnet.co.uk
Age: 32
Country: Scotland, UK
Surgery: Ileostomy
IBD: CD
More Info: Would like to hear from anyone who has been through this type of surgery, for a chat. I am upbeat and I don't let my condition change my life. Still continue motorcycling, hill walking, swimming and general outdoor activities.
7th February 2003
Name: Chris Garton
Email: bosshog1948@aol.com
Age: 54
Country: Lincolnshire England
Surgery: Ileostomy
IBD: UC
More Info: I am quite new to this as I only had my Ileostomy done in 2001 after having Ulcerative Colitis for 12 years. I am an oldie at 54 compared with some of the brave youngsters you have listed. I do not know how they have managed to cope. I have just had more surgery this Jan 2003 for a remodelling job, so far it has been great so I hope that is the last of my problems. I would love to hear from any one from anywhere so please email me for a chat, although I have a loving wife and 2 grown up children I still find it hard to talk to non ostomates about certain things. Best regards Chris.
3rd February 2003
Name: Jacqui Lester
Email: jjlester@xtra.co.nz
Age: 28
Country: New Zealand
Surgery: Ileostomy
IBD: CD
More Info: I had surgery for severe Crohn's Disease when I was 16 years old, resulting in an ileostomy. My husband and I are planning our first pregnancy this year and would like information on others experiences. Thank you!
31st January 2003
Name: Nita
Email: AAuntNitaTX@aol.com
Age: 73
Country: Texas, USA
Surgery: Ileostomy
IBD: CD
More Info: Have had ileostomy since 1974 (when I was originally diagnosed with UC) & have had two major surgeries & 2 minor surgeries for it. Just discovered this site & would like to communicate with anyone wishing to do so. I am still very active, do volunteer & gardening, etc., love crossword & jigsaw puzzles. I think this is a wonderful site, & have given the address to a 2nd cousin of mine who is currently recovering from J-pouch surgery. I've had many various problems through the years, but have managed to keep an upbeat attitude. Hope someone will contact me.
29th January 2003
Name: Olivia Hayes
Email: dudleymommie@aol.com
Age: 33
Country: Staten Island, New York,USA
Surgery: Ileostomy
IBD: CD
25th January 2003
Name: Damian Hejl/Tai
Email: fitzy2002@xtra.co.nz
Age: 17 months
Country: Auckland, New Zealand
MSN: fitzy2002@xtra.co.nz
Surgery: Ileostomy
IBD: Hirschsprungs Disease
More Info: My name is Janine Hejl, I am the mother of a seventeen month old son (Damian) who has Hirschsprungs Disease. I'm keen to hear from any other parents who have a child or children with this disease.
21st January 2003
Name: Angela
Email: glen.harding@tiscali.co.uk
Age: 49
Country: Dorset, England, UK
Surgery: Ileostomy
IBD: UC
More Info: Suffered on and off with UC for 31 years before having emergency surgery (Oct 2002) due to flare up which was not responding to usual cocktail of drugs. It is now the middle of January 2003 and have adapted to, as yet, my unnamed new appendage extremely well - apart from painful skin problems around the stoma which I am told is UC manifesting itself as it is still active in my rectum (left insitu for possible formation of ileo-anal pouch). Would welcome any comments, for and against this latter surgery.
19th January 2003
Name: Paul
Email: trilithium@ntlworld.com
Age: 49
Country: UK
Surgery: Ileostomy
IBD: Vasculitis
17th January 2003
Name: Cindy
Email: RN4maknme@aol.com
Age: 34
Country: USA
Surgery: Ileostomy
IBD: Total Intestinal Hirschsprungs
More Info: My daughter, Makenzie, has short gut from Hirschsprungs disease - a permanent ostomy - is TPN dependent and is now on a waiting list for intestinal transplant at Childrens Hospital of Pittsburgh.
17th January 2003
Name: Lori Kneeland
Email: lorigirl78@aol.com
Age: 24
Country: Billerica
AIM ID: lorigirl78
Surgery: Ileostomy
IBD: UC
15th January 2003
Name: Jessica Smith
Email: lolita212@hotmail.com
Age: 18
Country: Geelong, Australia
MSN ID: lolita212@hotmail.com
Surgery: Ileostomy
IBD: Irritable Bowel Syndrome
More Info: Considering getting an ostomy in order to overcome Irritable Bowel Syndrome, would like to chat to anyone who has undergone the op for IBS or for any other reason!! I want to know what i'm getting myself in for, especially would like to hear from anyone around my own age! Thanks guys!
9th January 2003
Name: Billie Morgan
Email: billietakin@voyager.net
Age: 24
Country: Middletown, Ohio, USA
MSN ID: mysterygal78@hotmail.com
Surgery: Ileostomy
IBD: UC
More Info: Hello all, my name is Billie - I'm 24, will be 25 in March. I have ileostomy due to UC that turned into colon cancer. Anyone who loves to chat, feel free to email me and add me to MSN if you have it.
5th January 2003
Name: Thelma Beadle
Email: modelt37@msn.com
Age: 65
Country: Franklin, Illinois, USA
Surgery: Ileostomy
IBD: Familial Polyps - Gairdners Syndrome
4th January 2003
Name: Lyn Wyer
Email: lynwyer@yahoo.com
Age: 45
Country: Durban, South Africa
Surgery: Ileostomy
IBD: Radiation Damage
More Info: Hi there - I had surgery about 3 months ago and am battling to come to terms with it all - my bag is still mostly fluid - how long does that last? I have lost weight and am still losing weight - is there a support group here in South Africa? Does anyone know? Any input would be appreciated.
Copyright © 1997, 1998, 1999, 2000, 2001, 2002, 2003, 2004 Shaz's Ostomy Pages. All rights reserved.
If you would like to use any of the images in these pages, please email me to get permission. Thanks.
If you would like to use any of the images in these pages, please email me to get permission. Thanks.