|
Please read the
View Guestbook |
|||
Ileostomy Contact List - Page 12
If you would like to add your name to this contact list, please
fill in your details here.
13 July 2004
Name: Judy
Email: samjags@torchlake.com
Age: 49
Country: USA
AIM: krlfbowl2004
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: Need some insight on some symptoms that I'm having. Had surgery for UC & Crohn's in 1996, 6 months later emergency surgery for adhesions, which caused a foot of the small intestine to be removed, from strangulation. Was problem free until lately here. Have been having raised bumps along the rectal scar line that eventually pop and go away. Just wondering if anyone else has had anything like this happen. Waiting to see the doc. Just thought I'd ask.
10 July 2004
Name: Kent
Email: krlfbowl2004@insightbb.com
Age: 49
Country: USA
AIM: krlfbowl2004
Surgery: Ileostomy
IBD: Crohns
More Info: I've had chrons for 22 years, being an ostomate for 17years. The Chrons is in remmission and has been for quite sometime. I enjoy all type of activities, not once letting my situation, slow me down.
01 July 2004
Name: Jo
Email: mcdonnell@yahoo.co.uk
Age: 25
Country: United Kingdom
Yahoo: joliejoliejolie1979
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: Please feel free to get in touch! Happy to chat with anyone! Look forward to swapping stories soon... :-)
23 May 2004
Name: Jim
Email: jim@jugulur.com
Age: 43
Country: California, USA
AIM: jamescrumjr
Surgery: Ileostomy
IBD: UC
More Info: I'm new to the site and the internet and I'm looking to make ostomate friends especially in my area. I play in a heavy metal band that right now is playing all over So. Cal and have tour dates in the works for later in the year outside of California and I would love to meet others from the group later on down the road.
17 May 2004
Name: Brandy McConnell
Email: Brandyto81@aol.com
Age: 22
Country: Springfield, Illinois, USA
AIM: brandyto81
Yahoo Messenger: brandyto81_38
Surgery: Ileostomy
IBD: CD
More Info: Just looking for people to chat with that understand what I am going through. This is my third ileostomy site. First surgery was in 99, have had over 40 now. Thanks for you time.
23 April 2004
Name: Joan Smith
Email: jr@centurytel.net
Age: 68
Country: Heppner, Oregon, USA
Surgery: Ileostomy
IBD: Peritoneal Carconoma/overian cancer
More Info: January 7, 2004, I had bowel obstruction. Underwent surgery where it was discovered I also had primary Peritoneal Carconoma/overian cancer. An ileostomy was performed. Have had 3 Chemo treatments for cancer and was to have surgery April l9th for reconnection of bowel. White blood count down so surgery is delayed. Still have 3 more Chemo treatments left. My only problem is trying to get my ostomy to heal. Have gone through skin barriers, skin prep, stoma paste, stoma powder, malox, gone from flat wafer to convex wafer. Now using spray adhesive which works good. Only problem is the waste material from the small intestine absorbes into the wafer and eats through the adhesive leaving me "Burning and raw". Cannot keep wafer on over two days. Have had yeast infection three times. Need help on getting my ostomy to heal. Any help will most certainly be appreciated.
22 April 2004
Name: Alok: MT
Email: alokji77@yahoo.com
Age: 26
Country: India
Surgery: Ileostomy
IBD: UC
More Info: Single ostomate looking for a life partner.
25th February 2004
Name: Gary
Email: garypanzer1@aol.com
Age: 39
Country: Bristol, UK
Surgery: Ileostomy
IBD: UC
More Info: Hello, my name is Gary and I had my ileostomy in 1991, I thought it was the end of the world. That's it, I can't live with this I thought, but I have a great family and some great friends which helped me get my life back on track. Am going to do all the things I said I was going to but never got round to. I wanted to go to Australia (been 5 times), started my own business (cleaning and maintenance), buying my own house. Life does get better if you want it to, but it was due to the support from family and friends. Going back to Oz for 3 mounths to see more of the country. If any Oz's would like to email me on places to see I would be very greatful.
11 April 2004
Name: Kath Cantwell
Email: kcantwell14@hotmail.com
Age: 55
Country: Scottish Highlands, UK
Surgery: Ileostomy
IBD: UC
More Info: Have had my ileostomy for 20 years, so am an 'old hand' at it. Willing to talk to anyone in similar position, or 'new' ostomate who needs someone to talk to, and will help if I can. Think your web site is great! Very informative and helpful.
10 April 2004
Name: Gabriel Sanchez/Melanie
Email: tmbgsan@adelphia.net
Age: 5
Country: Susanville, California, USA
Surgery: Ileostomy
IBD: hirschsprungs
More Info: My son was diagnosed with Hirschsprungs Disease when he was 5 days old. He had a pullthrough at 1 month old and they removed 1/2 of his colon. He has been in and out of the hospital ever since. The last time was about a year ago. They did an ilestomy which did not work.Then they did a Botox Injection last May. That has and is the only thing that has worked so far for him. I would like to talk to other parents as well.
04 April 2004
Name: John D
Email: methosj@aol.com
Age: 31
Country: Acworth, Georgia, USA
AIM: methosj
Yahoo Messenger: John_Deale
Surgery: Ileostomy
IBD: spina Bifida
More Info: Just looking to chat with others about my age that have ostomies.
27th November 2003
Name: Nic Moss
Email: Laughinatya@hotmail.com
Age: 25
Country: Wigan, UK
MSN Messenger: Laughinatya@hotmail.com
Surgery: Ileostomy
IBD: Wrong plumbing at birth
More Info:Well, My name is Nici, I'm 25, Reading all the stories on here, I realise how lucky I am. I was born with all kinds of things wrong with my plumbing, and as a result had a ileostomy fitted onto my right side almost immediately.
Then when I was 12,I developed Kidney Problems and as a result had my Kidney removed, due to my bad plumbing, it was decided that I would benefit from a Urostomy. I had my Urostomy fitted on to my left side after a few comfortable hours in theatre, unfortunately once everything was in place, my Ileostomy refused to work, and 7 hours later both my Ileostomy and Urostomy had swapped sides and were getting on famously.
Thankfully everything has gone ok since (touch wood) Please get in touch if you fancy a chat, swap stories, or just have a laugh.
Keep Smiling
Nici
8th September 2003
Name: Liz
Email: smiler79@fsmail.net
Age: 24
Country: Birmingham, UK
Surgery: Ileostomy
IBD: CD
More Info:Would love to chat to any one of any age! :-)
11th September 2003
Name: Samantha Hill
Email: sam.hill@mailbox.tv
Age: 27
Country: Windsor, UK
Surgery: Ileostomy
IBD: UC
More Info: I am currently 8 weeks pregnant with my first post ileostomy baby. I would appreciate advice from anyone who's been in my situation or even someone going through it right now! Have excrutiating colic pains. Is that normal???
15th September 2003
Name: William
Email: levv12@usa.com
Age: 46
Country: New York, USA
Surgery: Ileostomy
IBD: UC
8th September 2003
Name: Liz
Email: smiler79@fsmail.net
Age: 24
Country: Birmingham, UK
Surgery: Ileostomy
IBD: CD
More Info:Would love to chat to any one of any age! :-)
1st September 2003
Name: Mona
Email: mhadland@msn.com
Age: 31
Country: Spring Valley, Minneasota, USA
MSN: schatzi
Yahoo Messenger: hexe72
Surgery: Ileostomy
IBD: Cancer
More Info:I was dx with colorectal cancer in 2000. Everything went fine chemo and radiation was a piece of cake. I meet my stoma November 2000. He was only to stay for 6 month but we got along so great so he stayed 2 and a half years.
I WISH IT WAS THAT SIMPLE! I had some other stuff going on after my surgery that never healed right. Like I had to have stents in my kidneys. I had a fistula in my right butt cheek and had to do 6 more months of chemo. Well anyway after all this time and like 6 big surgeries, finally the day has come to close the stoma. That was in May of this year. After I woke up I missed the stoma a little. I didnt miss it in the shower or when I got dressed. But I sure missed it at night when I couldn't sleep because I had to go to the bathroom every 15 min. My bm are the size of my small finger.
Well anyway overtired, I couldnt go places unless I had my diaperbag with me (HATE THAT!) Sometime in August I developed another fistula and hole in the colon. NOW I HAVE MY STOMA BACK FOR GOOD! This stoma is not as nice as my first one. My first one was long and skinny so it was easy to put on the bag over it but this one is almost flush to my tummy and fat so its kind of hard for me but hey it's new - its only been 2 weeks today - BUT I FEEL GREAT. If I can be help to anybody or you guys to me that would mean so much to me.
27th August 2003
Name: Laura
Email: tkinstle@bright.net
Age: 48
Country: Wapakoneta, Ohio, USA
Surgery: Ileostomy
IBD: Spina Bifada
More Info:I was born with Spina Bifada. By age 35 I had to have an urostomy done. Then in 1999, I had a colostomy done because my bowels were not functioning without use of strong laxatives. Then in 2002, my colostomy was not working even with irrigations so I had an ileostomy done. Then I found out a few months later that my ileal conduit had collapsed in my urostomy and now I'm making trips to Cleveland Clinc to have stints put in to avoid surgery. I wonder if anyone else has had a conduit collapse from adominable surgery. I also have pain in my rectum from the rectal stump that was left after the ileostomy surgery. I would like to hear from any ostomates with any of these problems.
23rd August 2003
Name: Dolores
Email: vabeachlady46@yahoo.com
Age: 46
Country: Virginia Beach, Virginia, USA
ICQ: 171578070
Surgery: Ileostomy
IBD: Crohns Colitis
More Info:A new Ostomate of 3 months. Had Chron's/Colitis for 20 years, but my surgery is because of a burst appendix and not knowing that it burst. Had 2 surgeries in 10 days. I am very grateful to be alive. Would like to chat with others.
23rd August 2003
Name: Amy
Email: abranton06@msn.com
Age: 27
Country: Minneapolis, Minneapolis, USA
Surgery: Ileostomy
IBD: CD
More Info: Hi! I suffered with a severe case of Crohn's for a long time and it just about ruined my marriage. Now with the Ileostomy we, as a couple, have different challenges. How do you ignore the bag when getting intimate? If you have any ideas that could help please email me! If you want to chat about living with ostomies contact me anytime!
21st August 2003
Name: Kelly
Email: Kelly@dominguez-sullivan.com
Age: 34
Country: Charlotte, North Carolina, USA
Surgery: Ileostomy
IBD: CD
More Info: Please help - having problems conceiving and wondering if scar tissue or tilted uterus could be the cause - any advice???
14th August 2003
Name: Janice Joyce
Email: janniepoopoo1@hotmail.com
Age: 48
Country: Canada
MSN:janniepoopoo1@hotmail.com
Surgery: Ileostomy
IBD: CD
More Info: It will be nice to chat with people who know what you're talking about.
14th August 2003
Name: Jo
Email: jojo@llennodcm.fsnet.co.uk
Age: 24
Country: Birmingham, UK
ICQ: 179415897
MSN: jojo@llennodcm.fsnet.co.uk
Yahoo Messenger: joliejoliejolie1979
Surgery: Ileostomy
IBD: CD
More Info: Hi! I'm 24 & have just been told my Ileostomy is going to be permanent! Very very big shock for me! A lot of things upsetting me too regards a permanent bag. Asking constantly 'why me'? Would love to hear from anyone with support or advise. Cheers ;-)
13th August 2003
Name: Diana
Email: ditreas@iinet.net.au
Age: 52
Country: Perth, Western Australia
ICQ: 137746861
Surgery: Ileostomy
IBD: UC
More Info: A special thank you to Shaz and all of you who have shared your details within these pages. Reading about your experiences helped me decide that when surgery became inevitable, I wanted a total colectomy and a nice neat ileostomy, without wandering into the realms of pouch surgery. I was an undiagnosed Celiac for 47 years (thank gawd for the internet or I might never have worked it out!!!) I thought everyone had pain when they ate, a gluten free diet changed that, but by then the damage had already been to my digestive system and I had had IBD for years. Finally, yet another colonoscopy showed that I had developed Ulcerative Colitis, then came 12 months of steroids... gosh don't they do dreadful things to your body. And if anyone has the answer to wether this 'fur pelt' I acquired will drop out by itself or wether I need to start heating the wax... I would love to hear from you!!! July 2nd 2003 I had my total colectomy, unfortunately my spleen was damaged during th e op and had to be removed and then to add insult to injury I got pleurisy, which added a whole new meaning to the word pain for the following month!!! Being a Harry Potter fan I had thought I would call my stoma "Hagrid"... but then I thought it might be tempting fate and it would end up big and hairy. "Hermione" was a fleeting thought and then my favourite little red head came to mind and I have called it "Run Weasley".
8th August 2003
Name: Darren Clark
Email: pepsiclark@aol.com
Age: 21
Country: Crewe, Cheshire, England, UK
Surgery: Ileostomy
IBD: perforated bowel
More Info: I have had an ileostomy for 20 months now. I have been through hell and back and am still here to tell the tale.
I am only 21 years of age and looking to swop stories with other ileostomists, also looking for friendship/relationship with any willing girls in the same boat!
Name: Samantha Hill
Email: sam.hill@mailbox.tv
Age: 27
Country: Windsor, UK
Surgery: Ileostomy
IBD: UC
More Info: I am currently 8 weeks pregnant with my first post ileostomy baby. I would appreciate advice from anyone who's been in my situation or even someone going through it right now! Have excrutiating colic pains. Is that normal???
15th September 2003
Name: William
Email: levv12@usa.com
Age: 46
Country: New York, USA
Surgery: Ileostomy
IBD: UC
8th September 2003
Name: Liz
Email: smiler79@fsmail.net
Age: 24
Country: Birmingham, UK
Surgery: Ileostomy
IBD: CD
More Info:Would love to chat to any one of any age! :-)
1st September 2003
Name: Mona
Email: mhadland@msn.com
Age: 31
Country: Spring Valley, Minneasota, USA
MSN: schatzi
Yahoo Messenger: hexe72
Surgery: Ileostomy
IBD: Cancer
More Info:I was dx with colorectal cancer in 2000. Everything went fine chemo and radiation was a piece of cake. I meet my stoma November 2000. He was only to stay for 6 month but we got along so great so he stayed 2 and a half years.
I WISH IT WAS THAT SIMPLE! I had some other stuff going on after my surgery that never healed right. Like I had to have stents in my kidneys. I had a fistula in my right butt cheek and had to do 6 more months of chemo. Well anyway after all this time and like 6 big surgeries, finally the day has come to close the stoma. That was in May of this year. After I woke up I missed the stoma a little. I didnt miss it in the shower or when I got dressed. But I sure missed it at night when I couldn't sleep because I had to go to the bathroom every 15 min. My bm are the size of my small finger.
Well anyway overtired, I couldnt go places unless I had my diaperbag with me (HATE THAT!) Sometime in August I developed another fistula and hole in the colon. NOW I HAVE MY STOMA BACK FOR GOOD! This stoma is not as nice as my first one. My first one was long and skinny so it was easy to put on the bag over it but this one is almost flush to my tummy and fat so its kind of hard for me but hey it's new - its only been 2 weeks today - BUT I FEEL GREAT. If I can be help to anybody or you guys to me that would mean so much to me.
27th August 2003
Name: Laura
Email: tkinstle@bright.net
Age: 48
Country: Wapakoneta, Ohio, USA
Surgery: Ileostomy
IBD: Spina Bifada
More Info:I was born with Spina Bifada. By age 35 I had to have an urostomy done. Then in 1999, I had a colostomy done because my bowels were not functioning without use of strong laxatives. Then in 2002, my colostomy was not working even with irrigations so I had an ileostomy done. Then I found out a few months later that my ileal conduit had collapsed in my urostomy and now I'm making trips to Cleveland Clinc to have stints put in to avoid surgery. I wonder if anyone else has had a conduit collapse from adominable surgery. I also have pain in my rectum from the rectal stump that was left after the ileostomy surgery. I would like to hear from any ostomates with any of these problems.
23rd August 2003
Name: Dolores
Email: vabeachlady46@yahoo.com
Age: 46
Country: Virginia Beach, Virginia, USA
ICQ: 171578070
Surgery: Ileostomy
IBD: Crohns Colitis
More Info:A new Ostomate of 3 months. Had Chron's/Colitis for 20 years, but my surgery is because of a burst appendix and not knowing that it burst. Had 2 surgeries in 10 days. I am very grateful to be alive. Would like to chat with others.
23rd August 2003
Name: Amy
Email: abranton06@msn.com
Age: 27
Country: Minneapolis, Minneapolis, USA
Surgery: Ileostomy
IBD: CD
More Info: Hi! I suffered with a severe case of Crohn's for a long time and it just about ruined my marriage. Now with the Ileostomy we, as a couple, have different challenges. How do you ignore the bag when getting intimate? If you have any ideas that could help please email me! If you want to chat about living with ostomies contact me anytime!
21st August 2003
Name: Kelly
Email: Kelly@dominguez-sullivan.com
Age: 34
Country: Charlotte, North Carolina, USA
Surgery: Ileostomy
IBD: CD
More Info: Please help - having problems conceiving and wondering if scar tissue or tilted uterus could be the cause - any advice???
14th August 2003
Name: Janice Joyce
Email: janniepoopoo1@hotmail.com
Age: 48
Country: Canada
MSN:janniepoopoo1@hotmail.com
Surgery: Ileostomy
IBD: CD
More Info: It will be nice to chat with people who know what you're talking about.
14th August 2003
Name: Jo
Email: jojo@llennodcm.fsnet.co.uk
Age: 24
Country: Birmingham, UK
ICQ: 179415897
MSN: jojo@llennodcm.fsnet.co.uk
Yahoo Messenger: joliejoliejolie1979
Surgery: Ileostomy
IBD: CD
More Info: Hi! I'm 24 & have just been told my Ileostomy is going to be permanent! Very very big shock for me! A lot of things upsetting me too regards a permanent bag. Asking constantly 'why me'? Would love to hear from anyone with support or advise. Cheers ;-)
13th August 2003
Name: Diana
Email: ditreas@iinet.net.au
Age: 52
Country: Perth, Western Australia
ICQ: 137746861
Surgery: Ileostomy
IBD: UC
More Info: A special thank you to Shaz and all of you who have shared your details within these pages. Reading about your experiences helped me decide that when surgery became inevitable, I wanted a total colectomy and a nice neat ileostomy, without wandering into the realms of pouch surgery. I was an undiagnosed Celiac for 47 years (thank gawd for the internet or I might never have worked it out!!!) I thought everyone had pain when they ate, a gluten free diet changed that, but by then the damage had already been to my digestive system and I had had IBD for years. Finally, yet another colonoscopy showed that I had developed Ulcerative Colitis, then came 12 months of steroids... gosh don't they do dreadful things to your body. And if anyone has the answer to wether this 'fur pelt' I acquired will drop out by itself or wether I need to start heating the wax... I would love to hear from you!!! July 2nd 2003 I had my total colectomy, unfortunately my spleen was damaged during th e op and had to be removed and then to add insult to injury I got pleurisy, which added a whole new meaning to the word pain for the following month!!! Being a Harry Potter fan I had thought I would call my stoma "Hagrid"... but then I thought it might be tempting fate and it would end up big and hairy. "Hermione" was a fleeting thought and then my favourite little red head came to mind and I have called it "Run Weasley".
8th August 2003
Name: Darren Clark
Email: pepsiclark@aol.com
Age: 21
Country: Crewe, Cheshire, England, UK
Surgery: Ileostomy
IBD: perforated bowel
More Info: I have had an ileostomy for 20 months now. I have been through hell and back and am still here to tell the tale.
I am only 21 years of age and looking to swop stories with other ileostomists, also looking for friendship/relationship with any willing girls in the same boat!
Copyright © 1997, 1998, 1999, 2000, 2001, 2002, 2003, 2004 Shaz's Ostomy Pages. All rights reserved.
If you would like to use any of the images in these pages, please email me to get permission. Thanks.
If you would like to use any of the images in these pages, please email me to get permission. Thanks.