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Ileostomy Contact List - Page 14
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03 Sept 2006
Name: Bobbi
Email: crispybird@msn.com
Age: 46
Country: Boise, Idaho USA
Surgery: Ileostomy
IBD: recurrent diverticulitis 4x in 9 mo.
More Info: I'm an avid quilter but am a little in the dumps the past few months, but I'm trying. I've had rheumatoid arthritis for 25 years and had been taking prednisone for years, which caused me to split open under the staples. I was on a wound vac and hated it, two pounds my #$%&!!
Hubby & I have been married 20 years, 4 kids and 9 grandkids, our first one was born on my 39th birthday and this year he waited until I felt good enough to have our party - he's 7... he's our "Bogie", they light up our lives
Once my wounds have healed I'll be able to get my reversal but am a little nervous about having more complications. I tapered down my prednisone after I split and am down to 1 mg a day, which doesn't even touch my RA. I have a long wait until I can take my Enbrel and Arava again. I just have to make myself get into my quilting stuff again, I have 6 different projects going on at once so have a variety to pick from.
Looking forward to writing!
15 Aug 2006
Name: Lynn
Email: tibbie_01@yahoo.com
Age: 29
Country: New York, USA
Yahoo: tibbie_01
Surgery: Ileostomy
IBD: UC
More Info: I was originally diagnosed with UC in 1992. Since then, I've had numerous surgeries which have led up to a permanent ileostomy in March 2004. I don't consider myself all that 'experienced' with UC or with ileostomies, but I know what has worked for me. I'm always willing to share the little I do know and definitely open to learning new things from others.
12 Aug 2006
Name: Michelle
Email: mich403@yahoo.com
Age: 33
Country: New York, New York, USA
Surgery: Ileostomy
IBD: CD
More Info: I was diagnosed with Crohns at age 9. Over the years I've had numerous surgeries. At age 17 I had permanent ileostomy surgery. I have been married for 1 1/2 years and am looking to try and get pregnant.
Any stories of encouragement are much appreciated.
10 Aug 2006
Name: Mimi
Email: bernalmbernal@yahoo.com
Age: 24
Country: Chicago, USA
Surgery: Ileostomy
IBD: UC
More Info: Hi, had an ileostomy for almost 1 year now. Starting to get used to it, but some days are just hard.
3 Aug 2006
Name: Judy
Email: judy_tracy_ramsey@yahoo.com
Age: 41
Country: Pellycity, Alabama, USA
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: I had an ileostomy - 2 in my lifetime. Once when I was 11 and again at age 41. My husband is having a hard time with it. I don't think my 14 years of marriage is going to survive my surgery. Any suggestions?
20 Jun 2006
Name: Kelly
Email: craelyward@aol.com
Age: 27
More Info: Firstly as a background, I already have one daughter whom I had before ever being diagnosed with UC who is a healthy and happy little girl. Since that time I have been diagnosed and have had several surgeries resulting in me now having a permanent ileostomy as well as my back end removed. My surgeries were in 2000, 2001 and 2005.
I recently got married in April 2006 and my husband and I would like to have another child (or at least start to try for one!) towards the end of this year. What has worried me is that last week, in my local newspaper, there was an article about women who have undergone the major surgery for UC having a 50% reduction in fertility! This has caused me to worry slighty about the damage that may have possibly been done whilst being "jostled about" during surgery - I am looking for reassurance and any information anybody could offer me to stop me fretting!
4 Apr 2006
Name: Gary
Email: gbshuster@yahoo.ca
Age: 52
Country: Toronto, Canada
MSN:gbs1on1@hotmail.com
Yahoo: gbshuster@yahoo.ca
Surgery: Ileostomy
IBD: UC
29 Mar 2006
Name: Jeanette
Email: nettie_b_44035@yahoo.com
Age: 24
Country: Elyria, Ohio, USA
MSN:capini69@hotmail.com
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: This is my second time having an ileostomy. I was first diagnosed my senior year of high school (1999) with Crohns. Within a few days I had to have emergency surgery. I really didn't want the bag, but it was either have it or die at that time. Within 6 months I was reversed. Now It happened again. Again I had to have emergency surgery (march 5, 2006). I have now decided to keep the ileostomy. I don't want to go through any of this anymore. After my surgery my boyfriend of 6 years left me. He said he just couldn't deal with it. If you have anything to help me get through this or any advise about ileostomys please e-mail me.
9 Jan 2006
Name: Cat
Email: capini69@hotmail.com
Age: 20
Country: Leeds, UK
MSN:capini69@hotmail.com
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: Hi I'm Cat!! I've had my stoma for about 4/5 years now and have been diagnosed for about 7 years now! Would like to chat to anyone of a similar age!
9 Jan 2006
Name: Keri
Email: Keri830@aol.com
Age: 29
Country: not stated
Surgery: Ileostomy
IBD: UC
More Info: I have had the ileostomy since I was 14 due to ulcerative colitis, I also have only one ovary and one fallopian tube because of a very large cyst a couple years ago. My remaining tube is blocked... so I just started this week the begining of IVF. My husband and I are praying we'll be pregnant soon! =) Is there anyone who has gone through IVF with an ileostomy?
29 Dec 2005
Name: Melissa
Email: Chinadoll78@verizon.net
Age: 27
Country: Mercer County, New Jersey, USA
Surgery: Ileostomy
IBD: IBS
More Info: I would like to speak to anyone with Crohn's and/or an ostomy in my age range. If you live close by a plus for friendship and support. Male and female welcome. Thank you!!
26 Nov 2005
Name: Steve
Email: steve.macca@freeuk.com
Age: 52
Country: Manchester, UK
MSN: wotmale@hotmail.com
Surgery: Ileostomy
IBD: UC
More Info: Hi, I have an ileostomy and have just undergone an unsuccessful attempt at reconnection and so I now have a permanent stoma. I'm fine with that. My marriage broke up in 2000 and I would like to chat to others in the same predicament and also I'd like to offer support or at least an ear to anyone who may need it.
5 Aug 2005
Name: Gina
Email: raven1972@yahoo.com
Age: 33
Country: Ohio, USA
AIM: gdmiller100
Yahoo: raven1972
Surgery: Ileostomy
IBD: Crohns Colitis
5 Jul 2005
Name: Erin
Email: efoursha@yahoo.com
Age: 27
Country: Texas, USA
Surgery: Ileostomy
IBD: Perforated Bowel
More Info: Just looking for other mom's that may be developed their problem post C-section similar to mine. Bowel perforated after my C-section, became intangled with an umblical hernia that went undiagnoised during my pregnancy. I have since had my ileostomy reversed, but suffer from accidents all the time now.
5 Jul 2005
Name: Lora
Email: angelheart_37_2003@yahoo.com
Age: ??
Country: Indiana, USA
Yahoo: angelheart_37_2003
Surgery: Ileostomy
IBD: UC
More Info: My 17 yr old son has cerebral palsy and has had an illestomy since 1999
2 Jul 2005
Name: LeAnn
Email: lemondrop_1063@yahoo.com
Age: 41
Country: Oregan, USA
Yahoo: lemondrop_1063
Surgery: Ileostomy
IBD: Gardners Syndrome
More Info: I had my ileostomy done in 1988 to prevent cancer. I have Gardner's syndrome, which causes thousands of polyps to show up in the intestines - large and small. If there is anyone out there with GS, I'd love to talk!
29 Jun 2005
Name: Todd
Email: jennyandtoddzacharias@yahoo.ca
Age: 34
Country: Canada
Surgery: Ileostomy
IBD: Gardners Syndrome
More Info: Hello, my name is Jenny and I'm writing this on behalf of my husband who had an ileostomy 4 years ago. We now have 3 children who are at risk of getting this disease. He has had constant complications from his surgery for the last four years. He's in constant pain and is always bleeding. We as a family would like for him to be able to live a pretty normal life and to be pain free. He wants to be able to enjoy watching our three children grow up without being in pain. If anyone has any information for us we would like to hear from you and also if you are a spouse dealing with the news of this disease we would like to hear from you. Any information would be appreciated. Hope to hear from someone. Thanks alot - Jenny
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