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Ileostomy Contact List - Page 15
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9 June 2008
Name: Lucianne
Email: vegasac777@sol.com
Age: 58
Country: Staten Island,New York, USA
Surgery: Ileostomy
IBD: Familial Polyps
More Info: My husband has surgery in March 2008 due to Cancer. Almost my husband's entire family has FAP including our son. Would like to talk to others with multi family members affected.
8 May 2008
Name: Sharon
Email: SHARON.SMETHEM@TESCO.NET
Age: 38
Country: Eastbourne, England, UK
Surgery: Ileostomy
IBD: CD
More Info: I am broody and am ttrying to find as much honest info about pregancy with a ileostomy as possible. I've had a stoma for nearly 5 years.
23 April 2008
Name: Cheri
Email: cherijadin@mac.com
Age: 50
Country: Florida, USA
Surgery: Ileostomy
IBD: UC
More Info: I suffered with UC for a year. Had ileostomy surgery. Six years later I was pregnant with my daughter. A year later I was pregnant with my son. Both pregnancies went well, but I developed a stomal hernia due to the pressure from pregnancy. I have never had the hernia repaired as it hasn't caused me any problems in the past 25 years. It was worth it for having my two beautiful children. Please contact me with any questions or concerns. I also had one child before the ostomy surgery. So I can tell you the differences of having a baby with/without a stoma!
26 Jan 2008
Name: Zahid
Email: zkadir@hotmail.com
Age: 36
Country: Karachi, Pakistan
Surgery: Ileostomy
IBD: UC
More Info: Your site is very useful.
I like to help people who has ileostomy in Pakistan.
I think I am the only one from Pakistan on the entire web. lol
Anyways you have made a very good site.Congratulations.
3 Jan 2008
Name: Jen
Email: jisbell1976@aol.com
Age: 31
Country: Kansas, USA
Surgery: Ileostomy
IBD: UC
More Info: I had my ileostomy surgery in 2002. I had no problems getting pregnant before my surgery, but have been unable to conceive since. Has anyone experienced this and found a treatment that works?
5 Dec 2007
Name: John
Email: jhnscho@btinternet.com
Age: 42
Country: Leeds, England
Surgery: Ileostomy
IBD: Toxic Mega Colon and Imperforate Anus
More Info: I was born with an imperforate anus and had a colostomy at a day old, but this did not work so I had to wait 35yrs till I had a surgeon who had some new ideas. We decided to go for a ileostomy. Yipee, success! In 2005 I had my colon totally removed to stop any more pain from the rubbish left below my ileostomy.
8 Nov 2007
Name: Doug
Email: puckead@msn.com
Age: 44
Country: Sanford, Maine, USA
MSN: puckead@msn.com
Surgery: Ileostomy
IBD: CD
More Info: Hey folks, I guess you could call me an "old timer" as I've had my ostomy for 20+ years. I'm in my 2nd marriage, with 2 kids from each of my marriages, plus a great step daughter from my current marriage. Life isn't always great, and sometimes my wife gets fed up with the amount of time I'm feeling crappy, but I try to think of myself as a "work in progress"... Anyone that would like to chat or e-mail is welcome to contact me, for support, venting anger, or just sharing a chuckle or 2... I'm a stay at home dad, so my schedule is, shall we say, flexible... lol
20 Oct 2007
Name: Gillian
Email: gillian.lunt@btinternet.com
Age: 30
Country: Runcorn, England, UK
Surgery: Ileostomy
IBD: CD
More Info: Hi out there. I'm Gill and had my op in June 06. I've had another op on my butt in Sept 07 and still waiting to heal. Anyway I'm divorced, really laid back except in cases of injustice, I get on my soap box then. I have a lovely little dog (Blossom) and a very old cat (Sam). Oh and I do love life.
23 Aug 2007
Name: Tania
Email: tania_owen@hotmail.co.uk
Age: 30
Country: Notts, England, UK
Surgery: Ileostomy
IBD: Familial Polyps
ICQ: 07799782181
MSN: daisy dimples
More Info: I am at this moment 11 weeks pregnant with an ileostomy bag.
11 August 2007
Name: Noelle
Email: nrewey@aspenmed.org
Age: 29
Country: St Paul, Minnesota, USA
Surgery: Ileostomy
IBD: UC
More Info: I've had my ileostomy since October 31st, 2007, after being diagnosed with UC in September 2007. My condition was very severe and the surgery was done in an emergency situtation. I had the pouch surgery in April 2007 but it wasn't successful. Hoping to try again. Would love to talk to anyone about this or anything really, sometimes it's a little isolating, but feel very lucky to be healthy again.
12 July 2007
Name: Shirley
Email: shirleylbutler@gmail.com
Age: 69
Country: Springtown, Texas, USA
Surgery: Ileostomy
IBD: UC
More Info: My surgery was 13 years ago.
15 June 2007
Name: Jason
Email: smithmaureen47@aol.com
Age: 40
Country: Walsall, England, UK
Surgery: Ileostomy
IBD: UC
More Info: I'm 40, living with my partner near Walsall, England. I have a permanent ileostomy due to UC and bowel cancer. I'm epileptic. I will answer all emails from fellow ostomates world wide.
06 June 2007
Name: Daleann (Sydney)
Email: cuteasapenny@hotmail.com
Age: 44
Country: USA
Surgery: Ileostomy
IBD: ??
More Info: I had ostomy surgery in 1992 and have been during very well since 1998!
If you would like to share your experiences or have questions, pls don't hesitate to send me a line.
Cheers!Syd
5 May 2007
Name: Letty
Email: chetachyre@yahoo.com.au
Age: 53
Yahoo: chetachyre@yahoo.com.au
Country: Sydney, Australia
Surgery: Ileostomy
IBD: Cancer
More Info: Dear Family of Mankind,
Where do I begin? I have just been through 2 operations, the first operation was 5 hours. I was diagnosed with Cancer of the bowel, Cancer that spread to my ovaries the surgeon performed a hesterectomy and cut part of my bowel which had the Cancer away and now I have got a temporary ileostomy bag. I developed a fistula between the vagina and rectum which just freaked me out to no end which is why the surgeon put the ileostomy bag on. The Doctor said it was caused from a surgical error. I have had the ileostomy bag now for 5 months and the fistula is not closed. I am so depressed about all this. I pray the fistula closes and the surgeon takes off the ilestomy bag very soon. The second operation to put the ileostomy bag on took 2 hours. That operation was performed 8 days after the first operation where they did the hysterectomy. I will pray for all of you all over the world for your healing and my healing.
Kindest love... Letty.
4 May 2007
Name: Elizabeth
Email: elizabethjablonski@yahoo.com
Age: 41
Country: Guy, Texas, USA
Surgery: Ileostomy
IBD: Colon shut down
More Info: I had a permanent ileostomy placed in July of 2006. The surgery was due to chronic abdominal pain and the inability to evacuate. My colon just would not work. I was on Hospice for three months, weighed under 90 #'s (I'm 5'4"), taking various narcotic pain killers and literally dying a little more each day. The ileostomy saved my life in the respect that I am able to eat and pass my food now and have gained my weight back but I am still in terrible chronic pain. I have had 7 previous surgeries due to female problems, one of which was due to stage IV endometriosis. My gastro Dr. now says the horrendous pain is caused by a neurological (nerve to muscle) disorder in my intestines. Two of the previous surgeons diagnosed me with pelvic adhesive disease and deemed this the cause of the terrible pain. One surgeon said it is caused by a mesh I have in my abdomen from a previos hernia and another surgeon says he has no clue as to why I am in so much pain. I have to
take several narcotic pain meds including morphine around the clock which only eases this horrific abdominal pain. I would love to hear from anyone that may have some insight into my condition. Whether right or wrong I would love at least some suggestions. Thank you and God Bless.
7 April 2007
Name: Cathy
Email: boba@gallatinriver.net
Age: 49
Country: Pekin, Illinois, USA
Surgery: Ileostomy
IBD: Colon Cancer
More Info: I had my ileostomy reversal surgery Dec 21,2007. Surgery went well. No one told me what to expect after the reversal. I have extreme soreness that makes me sob and take pain meds. I've found these things to be extremely helpful. Convatec protective ointment, Convatec Barrier spray, Lomotil, this has been a godsend. I also take anxiety meds when things get really bad. Sitz baths help some. They tell me my soreness and frequency are due to the radiation that I received for 5 1/2 weeks. I went thru chemo & radiation very easily, but this reversal has taken a toll on me. It's been 15 weeks, but I'm told it takes way over 6 months or longer to heal up. Has anyone else felt suicidal due to your discomfort? I seriously wondered if I had made a mistake the days the pain was so bad. I know that I'm not alone out there.
16 March 2007
Name: Emma
Email: emma_hughlock21@yahoo.co.uk
Age: 22
Country: Preston, Lancashire, UK
Yahoo: emma_hughlock21@yahoo.co.uk
Surgery: Ileostomy
IBD: Bowel Disorder
More Info: I am joining on behalf of my mum who is 50. Sshe is undergoing surgery on 20th March (her birthday) '07 to have a colostomy converted to an ileostomy due to years of constant problems. My family and I are terrified and I have just found this site which I think would help my mum lots. My mum isn't used to emailing so I thought I would join for her. Please help !!!!
Cheers!
Syd
.
26 Feb 2007
Name: Pattie
Email: marinemom1011@yahoo.com
Age: 38
Country: London, Kentucky, USA
Surgery: Ileostomy
IBD: CD
More Info: I've had crohns since i was 16, had to have a ileostomy on Aug 7th 2006. Still new to me, but would love to chat.
12 Feb 2007
Name: Cherise
Email: cherise1@telkomsa.net
Age: 33
Country: Durban, South Africa
Surgery: Ileostomy
IBD: Gunshot to abdomen/contracted TB in theatre
More Info: I would like to contact someone in my age group with no spouse that can help me get through this mentally or at least understanding... I was a police officer and was dedicated to my work so never married and need help to show me how to cope with everyday life. Is there a support group in Durban, South Africa that anyone knows of?
16 Jan 2007
Name: Valechia
Email: branchportbabe@yahoo.com
Age: 37
Country: Branchport, New York, USA
Surgery: Ileostomy
IBD: CD
More Info: I am a 37 year old single parent who is scared to death to have this surgery. But, I am tired of all the meds. they have put me on. Some of them had made me feel worse. Am I going to get a life back?
27 Jan 2007
Name: Les
Email: l.t.davidson@btinternet.com
Age: 57
Country: Liverpool, England, UK
Surgery: Ileostomy
16 Jan 2007
Name: Gillian
Email: g.lunt@ntlworld.com
Age: 52
Country: Runcorn, England, UK
Surgery: Ileostomy
IBD: CD
More Info: Hi! How's everyone? I gained "Bubbles" June 5 '06.
I went hysterical at first but accept things now and have gotten quite attached (ha-ha) now. Still have a few problems but doing my best to get over things. This is a fantastic site, first time on. Thanks Shaz. would love to hear from anyone to have a laugh to helping with problems, if I can.
14 Jan 2007
Name: Amy
Email: amyhyde81@yahoo.com
Age: 25
Country: Western Australia
Surgery: Ileostomy
IBD: CD
More Info: Hi, my name is Amy and I recently had surgery due to Crohn's disease in April 2006. I have a permanent ileostomy and would like to hear from anyone around my age group 20 - 30 years old about their experiences in dealing with having a permanent ileostomy and if they have any hints etc.
11 Jan 2007
Name: Rhiannon
Email: martak@frontiernet.net
Age: 25
Country: Ithaca, New York, USA
AIM: rhiannon942
Surgery: Ileostomy
IBD: hirschsprungs
More Info: I have a 6 month old son with hirschsprungs disease. He has had a pull-through and now has an ileostomy.
29 Nov 2006
Name: Samaira
Email: samairanadeem@yahoo.co.uk
Age: 32
Country: South Yorkshire , UK
Surgery: Ileostomy
IBD: CD
More Info: I am a 32 yr old asian who had surgery 5 years ago for crohn's disease. I have a 4 year old son and would love to get in touch with any other ostomates. I do not know many asians who have had surgery so would love to share any experiences. It would also be good to get in touch with any one close to my area. I live nr Sheffield, South Yorkshire, uk. Get in touch.
04 Oct 2006
Name: Debbie
Email: tstarlingo@aim.com
Age: 49
Country: Point Pleasant, USA
AIM: tsarlingo@aim.com
Surgery: Ileostomy
IBD: UC
More Info: I had my surgery in 2002.
Seeking to meet people the same as myself as I find people even same sex find having any kind of diversion overwhelming.
I can get past it but they cannot not.
If you would like to use any of the images in these pages, please email me to get permission. Thanks.