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Ileostomy Contact List - Page 8
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5 August 2002
Name: Tami
Email: stbramble@msn.com
Age: 30
Country: Nashville, Tennessee, USA
Surgery: Ileostomy
IBD: Colon collapsed into pelvis, muscle stopped working
More Info: I'm a 30 yr old female. Had to have a subtotal colectomy due to my muscle stopped working and my colon collapsed into my pelvis. Colectomy was done through a lap on 5-29-02. Everything was well until 5 days later. I ended up in emergency surgery - that's when I received my ileostomy (to save my life)... I am planning on a ileostomy takedown (reversal) in the near future.
3 August 2002
Name: Andrew
Email: gysintl@yahoo.com
Age: 35
Country: Chicago, USA
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: Been where everybody is and probably then some... always open to emails regarding crohns... God blessed me with crohns so I can help others.
3 August 2002
Name: Shah Sheela B
Email: sheela_mehta@yahoo.com
Age: 35
Country: India
Surgery: Ileostomy
IBD: UC
More Info: I'm unmarried. Ileostomy operation done in 1991. I want to know if it is possible for marriage and pregnancy. Any problems for sex?
3 August 2002
Name: Tammy
Email: bear4165@aol.com
Age: 37
Country: Omaha, Nebraska, USA
Surgery: Ileostomy
IBD: UC
More Info: I am currently pregnant with an illeostomy and wanted to talk with someone who has gone though this.
30 23 July 2002
Name: Danelle
Email: kitty_kat72485@yahoo.com
Age: 17
Country: Dunedin, Florida, USA
AIM: SugarPlum72485
Yahoo Messenger: kitty_kat72485
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: Hi evreyone! I am having a 'partial' ileostomy the 31st of July. I have been looking for people around my age who would like to talk about their experience with their surgery. I have been primarily treated for crohn's but could possibly have colitis. If anyone would like to talk please e-mail me.
23 July 2002
Name: Mark V
Email: cmpnys4@yahoo.com
Age: 46
Country: St Paul, Minnesota, USA
Surgery: Ileostomy
IBD: UC
More Info: Hi! Well, here it is in a nutshell... I'm a 46 year old guy who had ulcerative colitis at 12, my first ileostomy surgery at 14, and a revision at 16 (still managed a VERY sexually active puberty!). Saved my life! Been snorkeling, skydiving, etc. Married twice and father of a 17 yo son (Lord, help me). After 25 years with no problems, tried a Koch pouch at 40. Almost killed me, and I had it taken down a year later. Left me with even less bowel and a more fluid output. Oh well... Now I just struggle with chronic kidney stones (when I collect enough I'm going to make a shake-can cat toy)! Questions? Let me know. And don't forget to live - it's way too short!
16 July 2002
Name: Jeff G
Email: GREAZ2001@YAHOO.COM
Age: 32
Country: Minneapolis, USA
Surgery: Ileostomy
IBD: CD
More Info: I need to find a good supply source(like a catalog) Please let me know. Thanks and have a good day
15 July 2002
Name: Sharon
Email: tdemart@bigpond.com.au
Age: 32
Country: Melbourne, Australia
Surgery: Ileostomy
IBD: UC
More Info: Having suffered seven years with UC and rearing two small children an ileostomy and resection was a daunting option. It turned out to be the best decision I ever made. I have no regrets, I am well and the bag has not restricted my lifestyle. Please email me if you would like any support.
15 July 2002
Name: Iyataco
Email: Iyataco@nativeweb.net
Age: 30
Country: Seattle, Washington, USA
Surgery: Ileostomy
IBD: Spinabifida/Sacral Agensis
More Info: I just wanted to make sure that my name was here on hte contact list. It is always wonderful to talk to others!
14 July 2002
Name: Debbie
Email: b39_4ever@hotmail.com
Age: 50
Country: Wisconsin, USA
ICQ: 48591657
Surgery: Ileostomy
IBD: CD
More Info: I have signed Shaz's Dream Book, and also have my story on this web site. Feel free to contact me.
I am a very upbeat person. I have a local support group, as well as a group on yahoo with Shaz.
11 July 2002
Name: Ruth
Email: rfm3333@aol.com
Age: 54
Country: Williamstown, New Jersey, USA
Surgery: Ileostomy
IBD: UC
More Info: I have had my ileostomy for 28 years. All is well and so glad that I am living a healthy life. Two days ago I was told that I need to have a hysterectomy due to two huge fibroids. The doctor is hesitant about doing the surgery due to the posibility of adhesions and other complications. I am happy that the doctor is concerned, but would prefer a doctor who has experience in this area. Right now we are obtaining information from the hospitals and surgeons about my past abdominal surgeries (ileostomy & gall bladder). Then we will consult with a surgeon to find out the best treatment. My doctor said that I may not be a good candidate for the hysterectomy and she may consider other treatment if necessary. Would love to know if anyone has been through this. Thanks for your reply.
9 July 2002
Name: David
Email: Edmontonian@hotmail.com
Age: N/A
Country: Worcester, England
Surgery: Ileostomy
IBD: UC
More Info: I had the surgery 17 years ago after suffering from bad UC for a few years. Unfortunately I was unable to respond to the medication. I have for many years just dealt with the situation being an ostomist. I do not let on to people that I have an ileostomy. I have only just started to use the internet and have found that many people with stomas wish to communicate which has suprised me. I too would like to find new people to correspond with and share thoughts, views etc. I have found this site very interesting.
9 July 2002
Name: Michael
Email: michanthony12@hotmail.com
Age: 41
Country: Thomaston, USA
Surgery: Ileostomy
IBD: UC
More Info: I have gained so much weight and I can't seem to lose it,and I need my weight down to have the J Pouch put in and them the final stage of being reconnected to my lower bowels, it been over a year now is there anyone who can advise me on weight loss. Thanks
4 July 2002
Name: John
Email: jock.thomson@tesco.net
Age: 48
Country: Norfolk, England, UK
Surgery: Ileostomy
IBD: UC
More Info: Hiya, I'm a new ostomate. I had very sudden UC and spent 6 weeks in hospital getting iller by the day. Clostridium Dificile type B compounded and confused the medics. I had my ileostomy on 17th May 2002. I'm finding it a bit rough at times coming to terms with what has happened. I would love to hear from anyone and share experiences, ups and downs, laughs etc.
2 July 2002
Name: Paula
Email: maiapt@hotmail.com
Age: 30
Country: Portugal
Surgery: Ileostomy
IBD: CD
More Info: Hi, I am 30 years old female from Portugal. I had my ileostomy in 1990 and was diagnosed with crohns. It would be great to talk to others with this same disease. Anyone that would like to talk in Portuguese, Spanish or Dutch, e-mail me anytime you want.
27 June 2002
Name: Vicki
Email: vicki@iolfree.ie
Age: 26
Country: Dublin, Ireland
Surgery: Ileostomy
IBD: UC
More Info: I had my Ileostomy six weeks ago. I had UC for four years and never had a long spell in remission. I had severe reactions to Dipentum, Imuran and Purinethol so surgery was my final hope. I was terrified at the thought of being cut open and an ostomate in the hospital who was a week over the same procedure, saved my sanity and my parents. She was a great support to me. I would loved to return the favour to someone else. I feel terrific and I've got my life back again after being so sick. Feel free to contact me for a chat.
23 June 2002
Name: Orla
Email: ronanandorla@eircom.net
Age: 33
Country: Dublin, Ireland
Surgery: Ileostomy
IBD: UC
More Info: Hi, I had an Ileostomy six weeks ago (May 2002)- after nine long and painful months with UC and numerous trips to hospital due to chronic flare-ups! I have made a few Ostomate friends during this time, but if there are any others out there in Ireland (or anywhere) that want to chat, please feel free to contact me.
23 June 2002
Name: Ed
Email: Edfont0178@aol.com
Age: 42
Country: Marco Island, USA
Surgery: Ileostomy
IBD: UC
More Info: I had a permanent ileostomy one year ago. I am learning to live with this curse, but have two issues. First, my surgery left me impotent, viagra does not help. Second, since the surgery, my stomach bulges out like I swallowed a basketball. Any suggestions?
21 June 2002
Name: Tami
Email: stbramble@msn.com
Age: 30
Country: Nashville, Tennessee, USA
Surgery: Ileostomy
More Info: Ended up with an ileostomy after emergency surgery a week after my subtotal colectomy. Having a hard time adjusting but they say it will be reversed.
12 June 2002
Name: Julia Mandeville
Email: jubee99@ivillage.com
Age: 29
Country: Ottawa, Canada
Surgery: Ileostomy
IBD: UC
More Info: My ileostomy is permanent and I had my anus removed in 1999. I have had my ileostomy since September 1989. My husband and I are trying to have a baby and I need any and all information I can get my hands on about what happens to the stoma during pregnancy.
9 June 2002
Name: Tim
Email: tim13@adelphia.net
Age: 41
Country: Massachussetts, USA
Surgery: Ileostomy
IBD: UC
7 June 2002
Name: Rachel Larner
Email: kelseymay2000@aol.com
Age: 28
Country: Derbyshire, England
Surgery: Ileostomy
IBD: Hirschsprungs Disease
5 June 2002
Name: William H. Brown
Email: William.H.Brown@excite.com
Age: 59
Country: Colorado Springs, Colorado, USA
Surgery: Ileostomy
IBD: UC
More Info: I have had my ileostomy 37 years. I must remind myself that the disease is the villain in this story, the ostomy saved my life. It is not oerfect, but it is the MUCH better than the alternative.
24 May 2002
Name: Julie
Email: oasischic25@hotmail.com
Age: 20
Country: USA
MSN Messenger: oasischic25@hotmail.com
AIM: irishprincess199
Yahoo Messenger: foxyoasis@yahoo.com
Surgery: Ileostomy
IBD: CD
More Info: Hi, I had my operation done at 17. I just had the colostomy and it was supposed to be connected. Then I got sick and my large intestines were badly diseased and had to be removed. That is why I now have an ileostomy. I am 20 now, just had the operation done in September for ileo. Please add me. I love to chat with anyone :)
24 May 2002
Name: Carla
Email: c_alexandra_s@hotmail.com
Age: 22
Country: Bayamon, Puerto Rico
Surgery: Ileostomy
IBD: CD
More Info: A los 21 años me diagnosticaron CU. No estuve ni cuatro meses de mi diagnóstico que me operaron de emergencia. He estado casi nueve meses con la ileostomía y me ciento super bien. Ya he sido sometida a dos operaciones y tengo u J Pouch. Ahora en julio me cierran la bolsita. Queria compartir esto con ustedes. Cuidense mucho. Que Dios los bendiga.
24 May 2002
Name: Gary
Email: garyc@rapid6.fsnet.co.uk
Age: 32
Country: Scotland
Surgery: Ileostomy
IBD: CD
More Info: Hi, my name's Gary. I have had my ileostomy for 3 years now, and although i am getting on with life, it would be nice to talk to others in the same situation as me... look forward to hearing from you. Take care...Gary
24 May 2002
Name: Misty
Email: quailscott@juno.com
Age: 26
Country: Texas, USA
Surgery: Ileostomy
IBD: UC
More Info: I have had an ileostomy for almost 2 years. My husband and I have tried for a year to get pregnant. Any advice?
14 May 2002
Name: Dawn
Email: dc32659@aol.com
Age: 43
Country: Illinois, USA
Yahoo Messenger: elle1012
Surgery: Ileostomy
IBD: CD
More Info: I had my Ileostomy surgery when I was 11. I had my son 16 years ago. I had no problems during my pregnancy. I wound up having to have a C-section, nothing to do with my ileostomy. I would be happy to talk to anyone who has questions about pregnancy with an ostomy.
12 May 2002
Name: Astrid
Email: asteroid@eurosport.com
Age: 28
Country: UK
Surgery: Ileostomy
IBD: CD
More Info: I am joining this list basically because at the moment I feel really down and depressed because of the ileostomy. I'd like to get in touch with somebody who (hopefully) will tell me that everything will be fine...
11 May 2002
Name: Peter
Email: pmallon@aol.com
Age: 51
Country: USA
Surgery: Ileostomy
IBD: Crohns Colitis
More Info: I had my surgery 22 years ago. I suffered with Crohn's / colitis for 9 years.
When I went into the hospital I weighed 99 lbs. When I left the hospital, I gained a pound a day for 42 days straight. My appetite returned and the pain went away. I now weigh 165 lbs which is what I weighed in high school. I am an expert skier, play golf, coached litle league (1 championship), travel and finished my Ph.D. Anyone who wants to talk just e-mail.
11 May 2002
Name: Linzi
Email: lyndseyb52@hotmail.com
Age: 26
Country: Merseyside, UK
Surgery: Ileostomy
IBD: UC
9 May 2002
Name: Jerry
Email: jerryz@ili.net
Age: 56
Country: Lincoln Park, USA, USA
Surgery: Ileostomy
IBD: UC
9 May 2002
Name: Dennis Rogers
Email: halfbuck52@att.net
Age: 49
Country: Bethel Park, Pennysylvania, USA
Surgery: Ileostomy
IBD: UC
More Info: I am here for anyone who needs or would like to talk about being a ostomate or is thinking about surgery. I have had my ileostomy for 16 years & have been pretty much problem free. I do just about everything now that I did prior to my surgery. Having an ostomy is not the end of life, it is just the beginning. I don't get a chance to read my mail every day but I do check it several times a week. I will get back to you if you write me.
9 May 2002
Name: Annmarie Palmer
Email: reresunshine1@hotmail.com
Age: 48
Country: New Gloucester, Maine, USA
Surgery: Ileostomy
IBD: UC
More Info: I am a 21 year survivor of UC. "Rosie"and I have been together a long time and I am thankful every day that she saved my life. I also had a temporary colostomy before my ileostomy surgery. Have lived my life to the fullest so far. I have a wonderful husband and family who have always been there for me. I would like to correspond with any one who needs help coping with their new life or has any questions they need to ask regarding living with an ostomy. Being given an ostomy is NOT a death sentence... it's a life sentence! Hope to hear from you.
7 May 2002
Name: Mark M
Email: here4areason@hotmail.com
Age: 38
Country: Calgary, AB, Canada
Surgery: Ileostomy
IBD: CD
More Info: Had Crohns since 1981 was misdiagnosed with ulcers, until I lost 100 lbs in a month. (This is better than Weight Watchers Lol) Had a resection in 95' to get off the corticalsteroids. At the time my surgeon said I would have a 20% chance per year of the Crohns coming back. Went on for five years and guess what? Almost to the day I get a chance to see my surgeon. From 2000-2002 I've spent a total of 13 times in for surgeries due to fistulitis and had another resection and the installment of an ileostomy. This is all new to me now. Trying to cope and be strong for others. Kind of feel ugly and embarrased by the whole ostomy thing. Any advice or email would be great. Loads of happiness to all.
1 May 2002
Name: Lawrence W Barnes
Email: Y junebug@aol.com
Age: 32
Country: Washington, USA
Surgery: Ileostomy
IBD: CD
More Info: Diagnosed with chronic Crohn's disease at age 14. Had first of many operations at age 17, the last operation resulted in a proctocolectomy and illeostomy at the age of 27.Have had many problems and am currently on TPN by IV ,at home 12 hours a day. I have to take a lot of pain medication, due to chronic pain from adhesions and errosion of skin surrounding stoma. Has anyone else had any problems similar to mine? Please respond if you have any questions or just want to talk.
27 April 2002
Name: Matt
Email: matt_davies_@hotmail.com
Age: 18
Country: Canada
Surgery: Ileostomy
IBD: UC
More Info: I've only had my ileostomy for about 11 or 12 weeks now. It had made me feel a lot better, but I'm still getting used to everything.
27 April 2002
Name: Chris
Email: prtyby@aol.com
Age: 35
Country: Pennysylvania, USA
Surgery: Ileostomy
IBD: Colon Cancer
More Info: Diagnosed in May 2000, colon cancer.
22 April 2002
Name: Lisa Markle
Email: galaxygal40@yahoo.com
Age: 42
Country: Jackson, Missouri, USA
Surgery: Ileostomy
IBD: UC
14 April 2002
Name: Leanne-Marie
Email: lilMsChatterbox@handbag.com
Age: 14
Country: Scotland
Surgery: Ileostomy
IBD: Indeterminate Colitis
More Info: Hi my name is Leanne and I had my ileostomy made a year ago, the doctors dont know whether I have crohns or UC so I don't know if I can get it reversed! One month ago I fell ill and made frequent trips to the hospital before finally being diagnosed with having a huge abcess behind my stomach muscle, a fistulae and I had to have another stoma made!I love dancing, singing and animals and I also like to swim and wear sexy bikinis! My growth has been stunted quite alot and I am only 4ft11 and look like a ten year old but I have had a few boyfriends since the op!I want a friend who has had the same experiences as me and will keep in touch.
13 April 2002
Name: Mr Gheeandeo Kutwaroo
Email: gkutwaroo@onetel.net.uk
Age: 52
Country: Livingston, Scotland
Surgery: Ileostomy
IBD: UC
More Info: I would be very happy to make contacts with other ostomates and find out how they are coping with everday lives with a Stoma. Thanks.
13 April 2002
Name: Janice
Email: lawrence1022@attbi.com
Age: 41
Country: Kent, Washington, USA
Surgery: Ileostomy
IBD: CD
More Info: This is my second ileostomy, my first being with the pregnancy of my second child who is now 5. The first I received when it was discovered that I had a fistula right after finding out I was pregnant. I kept the bag for a yr and then was reversed even though the fistula had not closed. The second was done after the fistula began to enlarge and became more active. I was told that it was also temporary and that the fistula could be surgically fixed. That was in November 2001. Since then, the surgeon has said that there was too much disease to even perform the surgery to close the fistula, hence, the reversal is on hold. I feel tricked. The pain of the fistula was not unbearable. I only agreed for the chance of getting rid of the fistula once and for all. Not for the privilege of having a bag long term. Sorry for sounding so morose, but I'm not happy with this.
12 April 2002
Name: Vicky
Email: redfester@aol.com
Age: 29
Country: West Mids, Britain
Surgery: Ileostomy
IBD: CD
More Info: I suffered for 6 years with a J pouch before having my ileostomy in Feb 2001 so I am really new to all of this. Would like to hear from anybody who can answer questions and give advice.
11 April 2002
Name: Sinead
Email: missarmagh@yahoo.co.uk
Age: 26
Country: Armagh, Northern Ireland
Surgery: Ileostomy
IBD: CD
More Info: Hi, I have had an ileostomy since I was 19 and on the 3rd June 2002 I am having surgery to have my rectum removed and my ileostomy changed to a colostomy.
Since my first operation I have always been mentally and physicaly able to cope, however I am so scared about having my rectum removed as I know nothing about what the surgery invloves or how I will feel after it.
I would very much appreciate if someone could assist by supplying me with information or just a friendly ear.
I would also like to say (Having read the other messages on this site) that for those women or men looking to date...it is no problem. I was single when I got my ileostomy and have had great relationships since and I am planning to get married in two years...I hope that offers some comfort because all osomates are special, beautiful and survivors! God Bless!
11 April 2002
Name: Michelle
Email: jwmw@cablelan.net
Age: 34
Country: Canada
Surgery: Ileostomy
IBD: Cancer
More Info: I have Crohn's disease and have had several surgeries. I had a J pouch performed which was unsuccesful and had to go back to an ileostomy.
I desperately want to have a child. I am told that my only slim chance is through in vitro due to extensive adhesions and scarring. Is there anyone out there who has had several bowel surgeries and successful invitro and a healthy baby. I should also mention I've had a DVT which is also a concern for in vitro as the fertility drugs are likely to increase the risk. I'm 35 years old and running out of time. If there is anyone who can help me it would be greatly appreciated.
Thanks.
9 April 2002
Name: Richard
Email: rallen@solve.net
Age: 57
Country: Missouri, USA
Surgery: Ileostomy
IBD: Cancer
More Info: Was very familiar with hospitals prior to the cancer 3 years ago. Had lower half of pelvis removed, one kidney, bladder, gall bladder, broken back (3 places, different times) crushed leg with steel tubes, fractured skull and 14 surguries to reconstruct problems from birth over 18 years. Am still very happy and optimistic, (I guess what doesn't kill you really DOES make you stronger). My only problem is I have so much scarring on my abdomen with deep creases I have trouble making an appliance last longer than 24 hours without leaking. Any ideas from anyone would be greatly appreciated. As I am sure most of you know, they charge through the nose for appliances and using one a day gets to be very expensive.
8 April 2002
Name: Travis
Email: dinojarmon@hotmail.com
Age: 63
Country: North Carolina, USA
Surgery: Ileostomy
IBD: Cancer
6 April 2002
Name: Yael
Email: yaelsarajason@hotmail.com
Age: 20
Country: Canada
Surgery: Ileostomy
IBD: UC
More Info: I was diagnosed with UC when I was 10 (although I had it for a while before that, just my parents thought I was pretending about the stomach pain to get out of school), and I had my first surgery when I was 14 cause otherwise I was so sick the doctors said I would have died. Umm.... basically anything that could go wrong did go wrong - yes I had the internal bleeding, collapsed lung, peritonitis, anything & everything. Four surgeries later (the last was 4 years ago), and I am now really healthy and you know, I even know like my stomach scars - it makes more unique :) I would love to talk to anyone who wants to talk to me or ask me any questions about it. Thanks a lot!
5 April 2002
Name: Dorothy
Email: dlgresko52@msn.com
Age: 52
Country: NW Indiana, USA
Surgery: Ileostomy
IBD: Familial Polyps, Gardners Syndrome
4 April 2002
Name: Kris
Email: Kris.Wright@seabury.com
Age: 30
Country: Iowa, USA
Surgery: None yet
IBD: CD
More Info: I may need to have my colon removed, if my next scope shows any signs of dyplasia. I would like to know about the Colostomy.
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