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Urostomy Contact List - Page 2
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10 Nov 2006
Name: Amy
Email: amy_n_ed@hotmail.com
Age:45
Country:Tracy, USA
Surgery: urostomy
IBD: Bladder Cancer
More Info: would like to chat with ostomies like mine
there.
02 Sept 2006
Name: Lauren
Email: Susan@coleman23.wanadoo.co.uk
Age:21
Country:England
Surgery: urostomy
More Info: I've had my urostomy since I was 4 years old. My doctors have now discovered that I have two wombs after surgery to remove a cyst and revise my mitrofanoff. The left womb looks like it won't carry a child and I am not allowed to give birth naturally due to the fact they had to make me a anus when I was born. I was jusy wondering how this will affect me in the long run as I have an intermittent catheter and always get severve infections if the catheter is left in. Does the stoma close at all when you are pregnant due to your stomach expanding? Would really appriciate it if someone got back to me. Hope you are all well lauren x
there.
16 May 2006
Name: Rickey
Email: MAHA1334@BELLSOUTH.NET
Age:51
Country:Atlanta, USA
Surgery: urostomy
IBD:ISC
More Info: I am 51 years old and had to have my bladder removed last year due to bladder cancer. The cancer was contained to just the bladder, however, the cancer was aggressive and had invaded the muscle so the bladder had to go. I have also had to have one hernia surgery due to a hernia that developed under the stoma. Even though the doctor and nurses tell me I'm well and I can do anything I did before, I have to tell you that my energy level is not what it was before. I am overweight and the doctors also tell me that if I lost weight it would improve the way I feel overall. I have a wonderful, supportive wife, three children and three granddaughers. I'm thankful the cancer was found early. I'm glad to bel alive. Please feel free to talk to me. I'd love to hear your story.
16 Apr 2006
Name: Pam
Email: pam@forterie.com
Age:56
Country:Canada
Surgery: urostomy
More Info: Would love to have a pen pal.My urostomy was done in 1997. Would like to be able to talk to someone who has been there or going
there.
10 Oct 2005
Name: Harland
Email: harland@cadversioninc.com
Age:68
Country:Texas, USA
Surgery: urostomy
IBD:Cancer
More Info: I had bladder cancer in 2002. I had my bladder removed and have a urostomy bag. They removed my lymph nodes near my right leg. I didn't realize that removing the lymph nodes would make my leg swell permanently.
22 April 2005
Name: Willis
Email: theyettemkid@peoplepc.com
Age:52
Country:Clovis, California, USA
Yahoo Messenger: theyettemkid@yahoo.com
Surgery: urostomy
IBD: SPina Bifida
More Info: I have an ostomy for my kidneys. I've had that since 1971. So far I am doing great. I would love to meet different people who have a urostomy. I would love to chat with anybody male or female. I was born with spinal bifida and I am now in a wheelchair. I would love to meet a woman who I could date and be comfortable around> I am very shy because of my ostomy. I also would like to chat with different people with a urostomy to find out different problems they have had, so maybe they could help me and I could help them with different problems. Thank you for listening to me.
7 Nov 2004
Name: Pam
Email: pam@forterie.com
Age:54
Country:Canada
Surgery: urostomy
IBD: severe infection
More Info: I had my operation in 1997 due to a severe infection and suffering for over a year. Since then I have had kidney problems,hernia surgery and am now having skin irritations. I really need to talk to someone who has experienced it first hand. E mail greatly appreciated!
22 June 2004
Name: Karen
Email: kfburk@wpcs.net
Age:39
Country:Missouri, USA
Surgery: urostomy
IBD: spina bifida
More Info: I have had my urostomy 36 years and have done very well with it. It has decided to quit draining and I am awaiting surgery. I am looking for information from anyone who has had a continent diversion done after having had a urostomy. Hoping to hear from someone out there!!
27 April 2004
Name: Alan
Email: alan.bailey23@btinternet.com
Age:63
Country:London, UK
Surgery: urostomy
More Info: Just found your site on the internet (I'm a novice on the computer). I am married with two children.
Had blader and prostate removed. Cancer in October 2001. Very truamatised when diagnosed but with alot of love from family and friends have come to terms with it now
23 December 2003
Name: Lorraine
Email: lollharrison@yahoo.co.uk
Age:30
Country:Wiltshire, UK
MSN Messenger: lollharrison@yahoo.co.uk
Yahoo Messenger: Lozzy1002001
Surgery: urostomy
More Info: I had my urostomy done in September 03, due to having bladder probs all my life. I have a wonderful husband and 4 brilliant children, would love to chat to others :) feel free to contact me
10 August 2003
Name: Aggie
Email: AggieVoosen@web.de
Age:28
Country:Germany
Surgery: urostomy
More Info: I have a urostomy since nearly two years now. When the ostomy was new for me I get a tip from my ET ... She told me that the bag will stick much better if the part that sticks on the skin is warm - so I get the idea to put the bag on the heater/radiator for some minutes ... and it works well! Now - in the summer (and the summer in germany is very hot this year) I hold it between my hands for some seconds to a minute ... it also works well. Many greetings from germany, Aggie
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