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Please note that we are not doctors and therefore, cannot tell you what you should or shouldn't do or what is best for your situation. Instead, we are fellow ostomates who can give you friendly advice and will support you in any way we can, based on our own experiences. Any advice given is given in good faith and is the experience of the particular poster only and the board, and it's members, cannot be held responsible for the outcome... Shaz

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Old 21st May 2010
JohnChristopher JohnChristopher is offline
I'm New, Welcome Me
  

Join Date: Mar 2010
Gender: Male
Posts: 6
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JohnChristopher is an unknown quantity at this point
Default John's story
I have a neurological condition called neurofibromitosis- one of the effects of my particular case was that my body didn't pass solids like it was supposed to. So I was chronically constipated and just in terrible shpae. I was having pains and my doctor sent me in to have some imaging done to see exactly what was wrong. I couldn't get the imaging fluid down, so he sent me in to the hospital. Turns out I had a toxic megacolon with perforations, and had to have an emergency colostomy. Since I was also malnourished, I ended up having to spend a month in the hospital. I was out of work for a month after THAT on disability, but am doing a lot better now. I've had a lot of great support from friends, coworkers and family. Life has been better- learning to live with a pouch is not one of the easiest things I've done- but things could surely be a LOT worse.
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