Re: New here with huge question
I had a permanent ileostomy due to toxic mega colon, UC and although it was done as an emergency to save me, I do not regret it at all. I have three kids and the idea that I couldnt go anywhere with them and enjoy things with them was a nightmare. I missed out on a lot. After the surgery on 29 Nov 2009, my life has improved dramatically! I do get mucus problems but thankfully they are controllable by going to the bathroom. My surgeon offered me the chance to try a pouch prior to rectal removal but I have declined. The thought of spending a lot of time on the toilet again fills me with dread and the cancer risk too. I know everyones different, and Im only 38 but my life is so much better with the bag that I do not want to tempt fate! I will keep the bag, and rectal removal surgery is due soon. I know thats not an easy option either, but the bag saved my life and people only know about it if I choose to tell them. I dont think it restricts what I wear or anything. I know the bag can take a bit of getting used to but apart from the very odd leak, and a couple of problems with sore skin, it has completely settled down now. I dont even really think about it. I noticed that people were saying that with a pouch they can now eat what they want but I feel that with the bag. I was totally restricted when I had UC and lost so much weight. I can now eat most things that I couldnt have attempted before including curry and dairy products. I just make sure I really chew all my food and I find that helps. The only thing I cant seems to manage is pasta but thats about it. I enjoy works nights out now and going for meals with my family without having to wonder how far away the toilet is! For me, the bag is the right decision and as far as the rectum goes, I dont use it, so its better to get it out too.
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