Indiana Pouch Urostomy coming soon!!!!

[Sally- M]

Hi to all :

In March I will be getting a Indiana pouch cont diversion urostomy. My journey has been long and very disappointing. I developed a neurogenic/dysfunctional bladder following a radical hysterectomy for adenocarcinoma of the cervix at 33 in 1991. Somehow nerves were cut
I lost the urge to pee. I made it 13 years with straining daily to void.
(I would do it again)

The last 3 years have been difficult. Medications, and surgery have not worked. Tried sacral nerve stimulation 3 times. pudendal nerve stimulation once. Most recently had the mitrofanoff procedure and my appendix developed a hole in it and I can not pass a catheter into my bladder. Along with this I have had cellulitis twice.

Now I am back to ISC (which is difficult due to a small urethra and the position of the urethra). Along with terrible urge incontience landing
me into adult diapers

And so now I will doing this pouch and hopefully have my bladder
removed. On top of issues my pelvic wall is full of adhesions.


If anyone has a Indiana pouch I would love to hear your story. Or if anyone has a urostomy, cholostomy , or anything they would like to share I would be over joyed to hear from you.

Looking forward to be a part of this web site. Thanks for reading this
long--------message

Take care all,
Sally