Rachael's Story

Hi, I'm Rachael, 30 years old, and I have an ileostomy. At the moment, I don't know if it is permanent or not. If it is, then fine, I think I can live happily with it. If not, then great. Only time will tell.

My problems started after a visit to Egypt. I started passing blood and put it down to an infection caught while there. However, this never cleared up, and after a month of tests for ovarian cysts, I was refered to a new consultant who sent me for more tests. The one that will stick out in my mind is the barium enema - an experience that I wouldn't put my worst enemy through! (But, I do know people who had no problems with this procedure).

In June 2002 I was told that the likelihood was that I had bowel cancer - very rare in people under 45 - and that I was to go in to have the tumour removed the following week. My consultant told me that there was only a 5% chance of having an ileostomy, and that it would probably be temporary for 6 weeks. Unfortunately, the operation was unsuccessful. There is the possibility that the tumour has spread into my bladder. It was too risky to take the tumour out until it had been shrunk with radiotherapy and chemotherapy. The first question I aked was "Do I have a bag?" And, yes, I did.

I've come to terms with the bag. It has actuallly improved my life. (I was also aneamic from passing so much blood.) I've understood, mourned and accepted the fact that I am likely to be infertile, and that after discussion of options, the only one suitable for me will be egg donation. That DID hurt. My next job is to get my head round the chemo and radiotherapy which started this week.

All this, in under 3 months. But with a positive attitude, a wonderful, supportive boyfriend, good medical care and great friends, I know that I can get through it.

Rachael

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